Judi Chamberlain: A Retrospective,
Saturday, November 14, 2020
9am -1pm Pacific Time (Noon – 4:00 PM EST)
Join an array of colleagues and friends in remembering the fascinating life, times, and advocacy of Judi Chamberlain, an amazing leader. People who have tentatively committed to showing up include:
David Cohen, Susan Stefan, Darby Penney, Bill Stewart, Ted Chabasinski, Laura Ziegler, David Oaks, Ron Bassman, Celia Brown, Tom Behrendt, Phil Schulman, Jim Gottstein, Lauren Tenney, Peter Statsny, and Peter Breggin
Four hours is a generous time frame, giving you the flexibility of dropping in and out as you can!
Main Stage Meeting Link:
836 2424 6889
All times: Eastern Standard Time (EST)
Noon – 2:00 PM EST The Early Years
Noon – 1:00 PM
1) "On Our Own: Patient-Controlled Alternatives to the Mental Health System."
2) Psychiatric Survivors Moving Forward
3) NARPA to Lead the Charge!
1:00 – 2:00 PM
Pop-In, Pop out Options
2:00 – 4:00 PM EST
Pushing the Movement Forward
2:00 – 3:00 PM
Audience Q &A 3:00 – 4:00 PM
Pop-In, Pop out Options
4:00 PM EST Audience, Open Forum 4:00 – till ???.
The room will stay open as long as people wish to share stories, solutions, and objectives.
Main Stage Meeting Link:https://us02web.zoom.us/j/83624246889?pwd=YnFiQzN2alRiUUZmektXamc5b0FCdz09Meeting ID: 836 2424 6889
Judi Chamberlin : Her Life Our Movement (1944-2010)
"Is it okay if I totally trash your office?" It's a question Elyn Saks once asked her doctor, and it wasn't a joke. A legal scholar, in 2007 Saks came forward with her own story of schizophrenia, controlled by drugs and therapy but ever-present. In this powerful talk, she asks us to see people with mental illness clearly, honestly and compassionately.
Founder of Oakland Independent Support Center
This is rare footage of Howie the Harp, one of the leading forefathers of the survivor movement, who was also a leading advocate for the homeless on the east coast and the west coast. He left his legacy as co-founder of the Howie T. Harp Advocacy Center, a nationally recognized Peer Specialist training center in New York City. In this clip Howie expounds on the history of the movement and the impact and success of self-help (edited from Psychiatric Survivors and People Say I'm Crazy).
To all appearances, Eleanor Longden was just like every other student, heading to college full of promise and without a care in the world. That was until the voices in her head started talking. Initially innocuous, these internal narrators became increasingly antagonistic and dictatorial, turning her life into a living nightmare. Diagnosed with schizophrenia, hospitalized, drugged, Longden was discarded by a system that didn't know how to help her. Longden tells the moving tale of her years-long journey back to mental health, and makes the case that it was through learning to listen to her voices that she was able to survive.
Debra's story of living with voices is a journey into the soul. Describing her experiences, we start to understand, and are able to better support those human beings living with loud heads. Debra is project manager for the Psychological Interventions for Enduring Mental Illness Project at the Auckland District Health Board (ADHB). In this unique and innovative position Debra works in the clinical setting leading the development of psychological strategies for positive symptoms of psychosis and the first non-clinician to do so. She is also a senior tutor with the Centre for Mental Health Research and Policy Development at the University of Auckland.
Watch this introduction for 'Mad People's History' (CDST 504), an online course offered at Ryerson University. David Reville, an instructor with the School of Disability Studies, explains how the history of madness differs from the history of psychiatry, and highlights the importance of including the diverse perspectives of people diagnosed as mad, insane, or mentally ill. In this course, the stories of mad people are considered to address a question that is rarely raised in academic circles: in their own words, what is the history that mad people have lived over the centuries and what are the implications of that collective experience for contemporary times?
We call mad people lots of names. Most of them are not meant to be complimentary. But what do mad people call themselves? Do they accept labels that others stick on them? Do they apply their own labels? Why might one person choose a different label than another? This is a short documentary in which 12 Toronto activists discuss how they identify themselves.
David Reville shares a "Table" metaphor of the consumer/survivor movement
In the late 1960s, David Reville spent two years on a psych ward. His subsequent careers included: plumber, politician, community organizer, educator, and "mad" scholar - but his heart was always with the mad movement.
David Reville's interview is about mad activism and education, politics, and community organizing in Toronto, Ontario from 1970-2010. After being a patient in Kingston Psychiatric Hospital, Reville found work and meaning in community involvement, becoming Canada's first "out" mad politician. Being on Toronto City Council and in the Ontario provincial government gave him opportunities to change laws that impacted ex-patients and support successful psychiatric survivor initiatives. A boundary-crosser, Reville was drawn into post-secondary teaching in 2003, teaching Mad History in Ryerson University's Disability Studies program and winning the Canadian Association for University Continuing Education Award of Excellence in 2011.
This oral history provides a sweeping introduction to the history of the mad movement in Toronto, during the decades after deinstitutionalization with references to key activists and civic and provincial politicians of the period.
Ontario Mental Patients Association(OMPA)- Don and Alf
“We’d Rather be Mad with the Truth, than Sane with Lies”
Protest March 1970’s
Followed de-institutionalization from the late 60’s
( Also see slide 22 far right)
Contact her for consulting or keynotes
Began in the 1970’s
Was similar to other civil rights movements
Started with small informal groups of ex-patients.
Followed de-institutionalization from the late 60’s.
National Newsletter published in San Francisco.
Circulated from 1974-1986.
Outlet for political organizing.
Means of connecting ex-patients nationally.
Included poetry and artwork.
Photograph of a 30-Day “sleep-in” protest in then-Governor Jerry Brown’s Office to protest deaths and abuses in State hospitals in California.
Liberation from Mental Health System.
Developing their own self-help programs.
Refusing to accept the label of “mental illness.”
To overcome the prediction they would never recove
•First Conference in Detroit-1972
•Held on campgrounds, colleges, campuses
•Were organized with little to no money
People came by hitchhiking, buses, packed in cars
Crazy folk” (as he called us) are the most talented people in the galaxy. “Instead of diagnosing, locking up, and treating us, the world should recognize our true worth and support our talents, creativity, and sensitivity.” Howie carried a harmonica with him everywhere, to make music, mediate conflict and create peace.
1978- Published her book
On Our Own: Patient Controlled Alternatives to the Mental Health System.
Considered by some to be the “Mother of the Consumer/ Survivor Movement.”
1985- On Our Own of MD first funded drop in center with State Funds.
1988- SAMHSA funded 13 Demonstration Drop in Centers.
1985- First Alternatives Conference, Baltimore MD.
1986- Congress passed the Protection and Advocacy for Individuals with Mental Illness (PAIMI) Act.
1986- Sally Zinman, Howie the Harp and Su and Dennis Budd wrote first manual with funds from the Federal Government “Reaching Across.”
Painting Alone and Waiting by Jean Campbell
Research by and for mental health clients
500 persons interviewed
61 percent of clients stated creativity essential to their well-being
24 percent stated they lacked creativity in their lives
•National Mental Health Consumers’ Self-Help Clearinghouse established in Philadelphia-Joseph Rogers
•Arts Guidebook Published- “Reaching Across with the Arts”
•Self-Determination and Self-Sufficiency
•Adverse Childhood Experiences (ACE) study
•Confronting Stigma and Discrimination
•Arts and Peer Support
•Offices of Consumer Affairs- First in Alabama- Joel Slack.
National Mental Health Consumers’ Self-Help Clearinghouse (in Pennsylvania)
Joseph Rogers and Susan Rogers
First Consumer Affairs Director, Center for Mental Health Services/SAMHSA
Mind Freedom International
Executive Director, National Empowerment Center
Peer Specialist Certification
International Association of Peer Supporters iNAPS
Peers in many different venues
Mary Ellen Copeland and Shery Mead
A self-help arts guide published in 2000 with funds from CMHS with information that is still relevant and helpful to mental health consumers today
Cemetery restored with beauty to honor 25,000 people who had been buried in unmarked graves at Central State Hospital since 1842. This project, coordinated by Larry Fricks and Pat Deegan, has spread across the U.S. and many others like it now exist at other hospital cemeteries, including the cemetery at St. Elizabeth’s Hospital in Washington, DC.
Sally Zinman, Pat Deegan, Jacki McKinney, Gayle Bluebird
2013 NYAPRS Conference, Catskills, NY
Honored as “Lifetime Achievers of the Consumer/Survivor Movement”
Sally Zinman ( Sally's House -Peer Respite)
More people with Jobs
People living independently
Specialized Positions for Peer Supporters
Peer Support Respite Centers
Peer Run Art Centers
Online Training for peer specialists
With gratitude to
( Also see slide 22 far right)
Contact her for consulting or keynotes
I have been a crusader to change the mental health system for almost 40 years. I have worked in many peer related positions in the state of Florida, Georgia and in Delaware. To witness the progress and be part of it is truly amazing. As a nurse I have been able to combine my nursing background with my peer background and have been a consultant to many state hospitals to develop peer roles. I have written guidebooks on the subject of peer specialists and for inpatient peers. I am now retired as of January 2015 and much enjoying less stress but not less activity. I am concentrating on being a writer and just completed a published memoir, "You're Pretty When You Smile". I write a "poem for the day" on FACEBOOK and am actively promoting the arts at peer conferences and to develop an arts festival for 2016. My Goal: to keep going as long as possible, to dream, implement and sit back a few years from now and smile at History in the past and History in the making.
The International Association of Peer Supporters (iNAPS) is a 501(c)(3), non-profit organization. It was begun by a small group of peer specialists in Michigan interested in what was happening in other states. Founded in 2004, the organization now includes members from every state and several countries outside the US. Members of this network can come together to share their ideas and innovations, exchange resources and information based on real world application, and add their voice to others when concerns and issues affecting all of us require a global response from a global community. We are actively and intentionally working on making iNAPS a more inclusive and safe space for individuals who have historically been marginalized.
The INAPS Conference is the longest running internationally attended conference devoted completely to peer support practices. The conference brings together members of the peer support movement to share ideas, strategies, and innovative programs and ideas. Members receive a significant discount on conference registration.
CAMHPRO’s mission is:
“to transform communities and the mental health system throughout California to empower, support, and ensure the rights of consumers, eliminate stigma, and advance self-determination for all those affected by mental health issues by championing the work of consumers and consumer-run organizations.”
2000 Embarcadero Cove
Suite 400 Box 80
Oakland, CA 94606
Mental Health Association of Northern CA
Contact : Susan Gallagher
Contact phone: (916) 366-4600
In 1946, coalition of mental health patients, mental health service providers, and interested community members began a local Mental Health Association chapter in Sacramento, which is now known as Mental Health America of Northern California, or NorCal MHA. For nearly 70 years, NorCal MHA has provided mental health consumers with culturally-affirming peer support services, assistance in navigating various human service agencies, and advocacy for consumer-oriented public mental health policies. Currently, NorCal MHA provides these services in Amador, Calaveras, Placer, and Sacramento counties in California, and offers technical assistance to other mental health agencies statewide.
Peer Driven since 1989
1851 Heritage Lane Ste. 187
Sacramento, CA 95815
The mission of Consumers Self Help Center is to develop and implement Consumer driven programs and services based on the self help philosophy to empower individuals with psychiatric disabilities.
Today, Consumers Self Help Center offers two multi-service Wellness & Recovery Centers, and Patients Rights Advocacy in Sacramento, Yolo, San Joaquin, and Contra Costa County.
Through it all, we have remained peer-driven, and peer-operated.
The adult resource center is known as Innovations Community Center (ICC). It is a peer-run program in which staff and volunteers foster an atmosphere of support for individuals on the path to wellness and recovery. (Formerly Circle of Friends)
For more information about the Adult Resource Center call 707-259-8692.
3281 Solano Avenue
Napa, CA 94559
Monday - Friday
9:00 a.m. - 3:00 p.m.
Empowering people to recover, succeed in accomplishing their goals, find meaning and purpose in life, and reconnect with themselves and others.
Activating the next generation of frame-breaking healthcare innovation to support people beyond their behavioral health needs and succeed in the community where they live, work, and play.
Intentional Peer Support: A Personal Retrospective by Shery Mead
Shery Mead's keynote address at the Experts by Experience Conference 2011
Shery Mead, Eva Dech,Steven Morgan, and Chris Hansen far (R)
Deep self reflection
Taking care of relationships
Being accountable to myself and others
Mad in America: Steven Morgan discusses his transformative journey from chronic "patient" to leading mental health advocate. Steven has been working in peer support and helping to create alternatives to traditional mental health services for the past decade. This is latest in a series of testimonials featured on MadInAmerica.com produced by the Open Paradigm Project.
Alternatives Conference 2014
Intentional Peer Support
In 2013, Steve became Operations Manager for Intentional Peer Support, where he brings a passion for creating instruments of social change, a love of organizational development, and a belief in the transformative power of community. On full moons he enjoys writing, playing music, woodworking, and taking long long walks.
Recovery Mental Health: Nov 3 2014
Mental health peer support worker Frances Skerritt gives a short speech describing her role in the mental health treatment team, and the opportunities and challenges she has faced therein.
The following is a history of the consumer movement written by the National Mental Health Consumers’ Self-Help Clearinghouse it is available online for free download at: http://www.mhselfhelp.org/techasst/view.php?techasst_id=16
Watch this video for 'Mad People's History' (CDST 504), an online course offered at Ryerson University.
David Reville, an instructor with the School of Disability Studies, introduces the consumer/survivor/ex-patient movement, offering learners several ways to conceptualize the movement. The six-part metaphor is intended to frame the origins, activities, and politics of the movement.
Reville was born in Brantford, Ontario. After graduating from Brantford Collegiate Institute in 1961, he attended Trinity College at the University of Toronto and proceeded to law school. It was expected that he would follow the career path of his father, an Ontario judge. Instead, Reville became manic-depressive and attempted to kill himself during his law studies. He was institutionalized in a psychiatric hospital and became a crusader for mental health reform upon his release.
During an interview with Canadian Press, Reville intoned, tongue firmly in cheek, "I became a New Democrat because I was mentally ill" and was bemused when his statement appeared as a headline in newspapers across the country. He was making the point that he had begun to learn something about powerlessness in hospital, and joined the NDP to fight for marginalized people. He once joked that he was the only MPP with a certificate to prove that he was sa